Posts Tagged ‘MS education’
ms and “functional reserve”
So, you may have heard people with chronic illness refer to the “spoon theory” when it comes to the amount of energy in any given day. (Everyone has “spoons” as their energy currency to spend in a day, but someone with MS, or a chronic illness, doesn’t have as many spoons, so has to decide […]
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Tags: autoimmune disease, functional reserve, ms, ms brain atrophy, MS education, multiple sclerosis, spoon theory
who’s still here?
I am… maybe? Definitely! (Sorry, biology nerd.) So, I haven’t posted here in a few years. However, my disease has changed, in a big way. MS used to be just a label — something I’d occasionally think about, mostly when filling out paperwork when visiting a new doctor. At that time, I barely had any […]
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Tags: ms, MS education, MS relapse, multiple sclerosis, ramblings
If you have MS, or know anything about the nervous system, you may be familiar with myelin. Bottom line–myelin is the “insulation” on the nerves, as they send information from our brain and spinal cord out to our muscles. For those of us with MS, the myelin is partially degenerated, due to the immune system […]
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Tags: ms, MS education, multiple sclerosis, myelin, myelin repair, remyelination, science geek
ms and loss of strength
Shortly after my diagnosis (defined by the only flare-up that I’m aware of), I started worrying about overall loss of strength. Of course–who wouldn’t? The first thing I thought, after the end of that flare-up, was–“good! No more current damage happening to my nervous system, I won’t have any more loss of strength than I […]
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Tags: exercise for ms, ms, MS education, ms flareup, multiple sclerosis, strength training
public perception of ms
Clearly, we have a long way to go. A few days ago, I got a message from a friend who was in the ER, waiting for an MRI of her spine. She’d lost some function in one arm, and (given her public health background) all she could think of was MS. She’d already had a […]
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Tags: ms, MS diagnosis, MS education, multiple sclerosis
breaking the silence
Recently, I “came out” about my diagnosis to one of my social groups. I’d say about half of them already knew from one-on-one conversations over the past year, but as I’m planning a fundraiser involving this group (ooh, news! more later), I figured they all had to know. I’m close with several members of the […]
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Tags: initial diagnosis, lessons from ms, MS education, multiple sclerosis, talking about ms, teaching
In Search of My New Normal 