Posts Tagged ‘rebif’

land(fill) ho!


So, I recently started doing Rebif injections for my MS, again. Previously, I used an autoinjector-device, so that I wouldn’t have to slowly push the syringe myself. It’s an acidic medication that stings, so the act of pushing a button that “flings it into me” was a lot more palatable. It was a spring-loaded device […]

going back.


So… I’m in the process of restarting Rebif. Yeah, I though I’d sworn off injections, too. Gilenya was destroying my immune system… 6? or was it 7? upper respiratory infections this year, and my white cell count was consistently low. I finally said NO MORE earlier this summer… and decided to go drug-free during my […]

(Bring kale.) I am officially ditching Gilenya. (And changing to WHAT, you ask?? Argh.) So as you may remember, my white cell count has been all over the place — mostly dangerously low — from about the 6 month point of Gilenya on. (I’m almost at 15 months.) I hadn’t really gotten sick… then this […]

Just when I think I’m so in touch with my body… I had felt strong, with just the little bit of fatigue that I’d developed with MS (aside from the migraines and the nerve pain… but who knows the relation with that… I digress…) So when my most recent MRI showed new disease activity, I […]

If you’re on MS medications, you know that they’re expensive as all get-out. Most of us are lucky enough to have some sort of coverage, or patient financial assistance program… much needed, because without either of these, many medications would run upwards of $3000-4000 every month. (And I know that MS isn’t the only disease […]

I think I’m about done with injections… unfortunately. Rebif has been working out for me. It has kept me relapse-free. My symptoms have been minimal. So why change? I feel like such a wimp when I say this, but… too many injection site reactions. A few days before leaving on our trip (end of July) […]

Back when I was initially diagnosed with MS in 2012, my neurologist diagnosed me off of an MRI from 2005. Meaning… I’d had signs of it since then. And the neuro I’d been seeing in 2005–who I’d been told had a good reputation–should have caught it, rather than blowing the report of “demyelination” off as […]

You may remember my last post, where I rattled on and on, bragging about how I use my diet and exercise to keep my MS at bay? Well, a few days after that ER trip, still feeling tight in the chest without illness, still elevated heart rate consistently, feeling faint… I thought: what if I’m […]

At long last… after a full month of non-use… I’m finally back on Rebif! My insurance had changed pharmacy delivery providers (as this medication gets shipped to me on ice), and I got 1 day’s notice of this change before I ran out of the previous month’s supply. How much time I spent on the […]

which had nothing… well, nothing directly… to do with MS. In fact, I’ve been joking with some folks that this is my body’s way to remind me that MS is just nothing but background noise in my life. I’m always telling my health (and nutrition, and physiology… but it especially comes up in health) students […]