Posts Tagged ‘chronic illness’

MS has made me… boring. (I’ll just be blunt with myself.) Part of it can’t much be helped, because I’m so much more tired than I used to be. I can’t really go out at night, I take a pass on so many events where I’ll be out after 10pm, because I know I’ll want […]

So, in less than a month, I have a relatively big birthday coming up… it’s not a “decade”, but I will be 45. Some of my age-peers are tossing around the typical mid-life crisis talk — where they want to be in 10 years, is this what life is all about, why is the sky […]

One and a half years ago, I started taking Ocrevus (ocrelizumab) to control my MS, which had breakthrough activity on my previous drug, Plegridy. Keep in mind that these are drugs that slow disease progress; there is no cure or known cause for our disease. But even in my seven years of illness, we’ve come […]

a great article


I’m still here… I just closed the show, and I may have to switch around my spring quarter teaching schedule (plus, prepping to celebrate Pi Day!) so there’s a ton of stuff in my world, as always. But I recently found this article that I believe many here can resonate with:   Things You Know […]

obsessing much?


So, I’ve been prone to obsessing. It’s like… my own FOMO. If you’ve been through massive life-changing experiences, you might get this. But I’ve had this “I only have how many good summers left in my life?” playing through my head ALL the time. And I keep on doing the math on how many good […]

… to someone in a bad situation? “It’ll all work out fine.” Because, left to its own devices, a situation typically does not work out fine. You have to WORK at it. There is often a struggle. (And, in the end, the struggle is typically worth it… but leave it alone, and things don’t just […]

Many of us with chronic illness have “invisible” problems. Who knows I have MS unless I tell them, really? (But I’m a heck of a lot more tired than I used to be. And I don’t have the bounce in my step that I used to, either.) But I try to ignore my invisible symptoms […]

on bravery


Throughout my MS journey, and my more recent abdominal tumor/surgery journey, I’ve had a handful of people tell me how brave I am. While I appreciate that others recognize that I maintain a positive attitude under tough circumstances… “brave” isn’t the word that comes to mind, even though I see it frequently applied to those […]

Recently, I came across the following article: How To Live Your Everyday Life With A Vacation Mindset As someone with a chronic illness, and now coping with chronic pain and another potential chronic illness, it’s frustrating to not be able to plan travel as I once did. I’m always looking ahead to the day when […]

the fire


I was listening to a business podcast earlier today, in which an entrepreneur was interviewed. One of the recurring themes was that getting her business off the ground wasn’t easy; whenever she encountered a roadblock, she creatively came up with a work-around, even if it took extra effort for the outcome. The host reminded the […]