Posts Tagged ‘gilenya’

going back.

15Aug16

So… I’m in the process of restarting Rebif. Yeah, I though I’d sworn off injections, too. Gilenya was destroying my immune system… 6? or was it 7? upper respiratory infections this year, and my white cell count was consistently low. I finally said NO MORE earlier this summer… and decided to go drug-free during my […]


(Bring kale.) I am officially ditching Gilenya. (And changing to WHAT, you ask?? Argh.) So as you may remember, my white cell count has been all over the place — mostly dangerously low — from about the 6 month point of Gilenya on. (I’m almost at 15 months.) I hadn’t really gotten sick… then this […]


Just when I think I’m so in touch with my body… I had felt strong, with just the little bit of fatigue that I’d developed with MS (aside from the migraines and the nerve pain… but who knows the relation with that… I digress…) So when my most recent MRI showed new disease activity, I […]


obsessing much?

13Feb16

So, I’ve been prone to obsessing. It’s like… my own FOMO. If you’ve been through massive life-changing experiences, you might get this. But I’ve had this “I only have how many good summers left in my life?” playing through my head ALL the time. And I keep on doing the math on how many good […]


OK, I’ve had it with this crap. Last week, I had my second infection of the year, and we’re only 7 weeks in? I used to never get sick. This was the “very contagious” stomach virus that went around. I actually kept a change of clothes in the car, just in case. (Yes, I still […]


MS meds and their side effects. Ahem. I’m sorry, I meant to say, “disease modifying therapy”, as it’s not really changing my disease — just maybe changing the course. Changing the amount of damage my MS does to me. We think. So, MS being an autoimmune disease and everything, the meds do strange things to […]


It’s that time! There are a few in the blog world, namely Chris Guillebeau, who conduct an annual review at the end of the year — what went well, what did not. Rather than a personal lashing with a wet noodle, I like to use this as a reflection, a recollection of things that actually […]