Posts Tagged ‘multiple sclerosis’
perhaps i need to lighten up?
MS has made me… boring. (I’ll just be blunt with myself.) Part of it can’t much be helped, because I’m so much more tired than I used to be. I can’t really go out at night, I take a pass on so many events where I’ll be out after 10pm, because I know I’ll want […]
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Tags: chronic illness, living with chronic illness, living with ms, ms, ms lifestyle, multiple sclerosis, ramblings
how ms makes me an introvert.
Spoiler: I am not an introvert. Nor am I an extrovert. I am somewhere in between. Over the past few decades, I’ve typically found myself leaning more toward the extrovert side. But lately, I feel like I’ve swung the other direction… These days, my brain is tired a lot. I thought it was “end of […]
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Tags: brain damage, brain fog, introvert, ms, multiple sclerosis
I wrote about this before, how having chronic illness makes me want to do things NOW and not postpone anything in life… I had yet another realization just a few days ago: as I’m surrounded by people (anyone, really) transitioning to bigger and better jobs, and I work for a university that helps non-traditional students […]
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Tags: autoimmune disease, fatigue, health, life is short, midlife crisis, ms, ms and work, ms fatigue, ms rant, multiple sclerosis, ramblings
a very good year.
Currently, I am on a train between Haifa and Tel Aviv, Israel, while writing this post. (Writing on my phone, too; usually I’m much too old-fashioned for that, and I insist on writing on my laptop. Hooray for my adoption of technology!) In a few minutes, at least in this time zone, it will be […]
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Tags: birthday, crossfit, goal-setting, goalsetting, international travel, Israel travel, ms, multiple sclerosis, ramblings, Spanish, travel
neda
An odd acronym, but believe me, it’s something we all strive for: No Evidence of Disease Activity. Now, I’m not saying that POOF! all the damaged areas in my brain and spinal cord would suddenly be gone once I reach NEDA. Here’s the 4-part definition: no progression of disability in a neurological exam, no new […]
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Tags: good news for ms, lack of ms disease activity, ms, ms disease activity, multiple sclerosis, neda, ocrevus
I thought I’d share with the community (of fellow MSers and caregivers) two resources that are accessible simply with an internet connection! First: one of the best, most honest, well-rounded Youtube channels about MS — Aaron Boster MD. Dr. Boster is an MS specialist in Columbus, Ohio, who started videos a few years back to […]
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Tags: aaron boster, exercise for ms, ms, ms gym, ms inspiration, ms resources, multiple sclerosis, neuroplasticity, youtube
So, in less than a month, I have a relatively big birthday coming up… it’s not a “decade”, but I will be 45. Some of my age-peers are tossing around the typical mid-life crisis talk — where they want to be in 10 years, is this what life is all about, why is the sky […]
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Tags: chronic illness, midlife crisis, ms, MS progression, multiple sclerosis, neuroses, ramblings
so, i tried to write a book…
Happy summer! We may be a bit heat-sensitive (find your A/C!!), but the opportunity for natural vitamin D is here, with bountiful sun! Have you ever experienced serious adversity and thought, “hey, I could inspire others! Why don’t I write about it?” Sure, we have. I did (having spent two weeks in a university hospital […]
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Tags: autobiography, autoimmune attack, autoimmune disease, challenges of writing memoir, hospital visit, medical, ms, ms attack, ms flareup, ms uncertainty, multiple sclerosis, multiple sclerosis flareup, on writing, overcoming adversity, writing a book
did this happen for a reason?
Everything happens for a reason. Or, so say many well-meaning folks. Everything? Really? The random plane crash due to metal fatigue. School shootings. Terrorist attacks. Is there a reason these happen? So, when someone tells me that I developed MS “for a reason”, I cringe. I don’t argue (we all gotta get along on this […]
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Tags: do-gooders, ms, multiple sclerosis, ramblings, rant
One and a half years ago, I started taking Ocrevus (ocrelizumab) to control my MS, which had breakthrough activity on my previous drug, Plegridy. Keep in mind that these are drugs that slow disease progress; there is no cure or known cause for our disease. But even in my seven years of illness, we’ve come […]
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Tags: b cells, chronic illness, dmt, fear, monoclonal antibody therapy, ms, ms and uncertainty, MS DMTs, MS drugs, multiple sclerosis, ocrelizumab, ocrevus, pharmacology, plegridy, sciencey ramblings
In Search of My New Normal 