So… I’m in the process of restarting Rebif. Yeah, I though I’d sworn off injections, too.
Gilenya was destroying my immune system… 6? or was it 7? upper respiratory infections this year, and my white cell count was consistently low. I finally said NO MORE earlier this summer… and decided to go drug-free during my summer trip. (I could’ve done another one-month bottle of Gilenya, at no cost to me. But I wanted, also, to rebuild my immunity when going someplace new.)
Now that I’ve been back a few days, I’ve been making all the arrangements for new prescriptions, delivery of refrigerated meds, etc. Once again, thinking of foreign travel while carrying syringes. Yeah, I know a lot of people do it (diabetics/insulin), but I was hoping that one of the orals would work out for me, in terms of overall convenience.
I learned a lot in my first round of Rebif… not only about injecting (which is less of a deal than you’d think) but also self-advocacy.
We’ll see how it goes….
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Tags: autoimmune disease, gilenya, immune system, medication change, ms, MS drugs, multiple sclerosis, oral ms drug, rebif